Monday, 18 July 2011

Creativity without limits

After undoing half - nothing more fun to start pulling on the line - and do not see the end! Left half of exit and there is now a roll of wire, all embarrassed.
Well, if there were socks, let's go throw it all away.
But after the game had only just begun!
He picked up the wires, made ​​some 'balls' and put in the ears.
- Mother, look at me! Now I am Frankenstein!
I wanted to sleep that way, which is obviously not allowed.
- OK Mom, I'll save and go to school tomorrow Frankenstein!

Life Lesson:
"Make every moment of our life is beautiful. The least gesture is a reminder future!" by Claude Aveline

Inclusion: We will build a bridge

I was given the opportunity to participate in a unique and innovative project for me. To participate, promote and pass a message to colleagues at the J. school so attractive theme INCLUSION. The idea came immediately, but soon led me to reflect on the importance of this issue and how the future can indeed be reflected in the formation of a less selfish, less self-centered and more tolerant.

Above all, we think that our children see and understand what surrounds them differently and that not only have to adapt and respond to different teaching situations that they face daily. Every day is a process of mutual learning and enriching, because we also parents, children and professionals, learn to see the world differently. The family and school are the social dimensions with their own requirements with which our children have difficulty in coping adequately, because the basic skills to do it are changed. In relations with other children, especially in school, Raising awareness is important for their peculiarities so that they can learn to accept difference.

INTEGRATION: "1% of cooperation is more than 100% of compassion"
Integration is to enable people with 'disadvantages' can live as active members of their community, with rights and duties - to get each member of the community accept individual differences as inherent to human beings - is a basic condition for promoting the integration . The respect for 'diversity' is crucial. Recognition of the differences between people enrich any community.

WE ALL TOGETHER TO BUILD A BRIDGE
Children with special needs require a bridge to transit, since they are isolated from the world. Only his parents and a group of people can build it. An integrated school benefits not only children integrated, but also the entire educational community. The awareness of society face the fact that integration and accept these differences, building a room for ALL bridge in which there is a strong and secure in a solid foundation.

Strategies? Working in the classroom of education, together these 'concepts'.
We can avoid marginalization, giving opportunity to all children with special needs the ability to integrate into a center of education

The arguments in favor of inclusive education are not only educational. There are serious social and moral level are given. Integrated education can lay the groundwork for a more open society, to which all people and in which one is 'different' is accepted and valued as part of humanity. The inclusion in society of individuals 'different' begins with an acceptance of the first forms of socialization - SCHOOL. The inclusion allows students without special needs the opportunity to share with children with SEN in one or another way and learn to accept and respect these differences. On the other hand, children with SEN have the opportunity to become a part of the school community and get an idea of ​​'realistic' about the multifaceted and competitive society in which they live. It will strengthen them so that they can participate more fully in a society as adults.

Inclusion of children with SEN is a double process: preparing the child with SEN to become full part of society, while the company prepares to receive them.

Sunday, 3 April 2011

"I do not know if what I like about you is what differentiates you from meor what we have in common. Like it or not, I am pleased by two things. What is common comforts me, what is different Stimulates me ... "- JoanManuel Serrat

Kids 'different' are not inferior, though still seen as inappropriate and there is a tendency to be isolated by their families. But the family has a member with disabilities do not have to differentiate themselves from families who do not.

Autism Diagnosis

I learned a surreal situation. Do not quite know the truth and whatis happening contours, but a doctor to diagnose a child who istelling the Autism Spectrum, when in reality is Autism Severus ...(???): little reason for this explanation exists to do for this childand the parents are not ready for the real diagnosis.

Do not know if it is possible that this is happening today, but it is true, I am outraged!

It never hurts to be worked out, these boys are a box of surprise!
I still remember in the early diagnosis of J. unable to get concrete answers, but I wanted answers and results! Never any doctor told me there was nothing to do! Simply, it was not possible to know!

Measures of 'treatment' undergo a long way!

They are intense and comprehensive programs that involve children, families and professionals, as indicated start as soon as possible.
Intervention programs to address the major symptoms in the social, communication and cognitive core symptoms of autism. The goals of treatment programs are plotted according to the difficulties and abilities of the child being taken into account the stage of development it presents itself. Generally, the behavioral intervention, speech therapy, occupational and psycho-pedagogical part of the program.

The methods of intervention are many and applied according to each child, but are applied. Nobody gives up a child, whatever their diagnosis!


* Applied Behavior Analysis - the well-known for short ABA - preparing the child to be in different environments with different people, social inclusion, educational and professional
* Training and Education of Children with Autism and Other Related Problems of Communication - shortening, known as the TEACCH - helps draw cognitive and behavioral strategies for the child to acquire skills. And fool yourself if you think it is a technique used only by teachers. Also you can use at home and work! Allows the child to organize and structure itself, through repetition and insistence. Work, work, work.
* Exchange Communication System of Figures - our friends PECS (Picture Exchange Communication System) - enables the child to communicate through cards with pictures. Again, you use at school, at home and even on the street. There are bags of transportation, a ribbon around his neck, a dossier, there are many way to be used, according to children's needs and its degree. Through these cards the child, with the help of all (!!!) begins to build your vocabulary and express their desires.
* Speech Therapy - not just for those who can not speak, although they may speak but have difficulty understanding and difficulty communicating. The main objective is the child learn to communicate in a useful and functional, is the area of ​​spoken language, either by signs or gestures.
* Occupational Therapy - to make the child as independent as possible, adding a cognitive, physical and motor. You can go from learning to play, something as basic as the daily life of how to dress, eat or go to the bathroom. As part of the social, fine motor and visual perception.
* Physical Therapy - motor difficulties when there is a reason to have physiotherapy. But not only. May be to address the lack of muscle tone, balance and coordination.
* Monitoring of psychology - in order to develop learning techniques that facilitate such learning and primarily find their potential and develop that potential.

And someone said there was nothing to do for this child because the parents are not prepared?

A severe autism may never acquire linguistic communication (never come to speak), but can work seamlessly with a computer ... And we continue to say that there is nothing to do for this child, because parents are unprepared for the diagnosis?

"The light is only avoided by beetles, thieves and ignorant."
Paolo Mantegazza


Love

"It's easier to move children our passions our understanding." (Baron de Montesquieu) - do it daily! Retribuida'm the best that can exist! delivery of their innocent caresses.
Wonderful
! ♥ ♥ ♥

I'm autistic ... and what is your power? :)

Living with autism

Many children with autism will grow slightly and be able to live their lives in an almost autonomous. But those with autism deeper will always need help. But let's not forget that all autistic children can have a happy life if they have the support and love from parents, siblings, family, doctors, teachers and peers.
Autistic children as all children are different in behavior and abilities. All children with autism have different symptoms, making it difficult to diagnose autism. A symptom may be easy to see a child and not see another.

On April 2 marks the World Day for Autism Awareness. The date established by the UN in 2007, aims to be a milestone in raising awareness and honoring all people and their families who live this everyday reality, often experiencing many difficulties and discrimination.

Tuesday, 8 March 2011

Sharing



I
share what I have shared with me. There are people in this profession for the love and dedication. So I leave here the words of Prof. J. shared with me. A THANK YOU is not enough!

"
Our John is increasingly growing. Today I fell behind a little because I caught an accident C.O. (where I live) and John went to the same alone. Plays the morning walks with colleagues andalways very happy at recess. Yesterday I prepared a statement for him this afternoon to do alone, and went very well. I've also gives all the messages perfectly. I feel the happiest, and therefore wanted to share with you."

For all these reasons
that we have reached and where we are going far beyond that! It is very caring and dedication of all that makes us get here.

Friday, 4 March 2011

Anthill

Comment: Wait John, the mother is tingling!
After a few seconds, the feeling passes. John asks:
- It's past the nest?
- Yes! - tell her
- Ah! Ants in bed is not!

Thursday, 10 February 2011

Query Development 2011


February 4, Query Development

And here I am again talking about a subject that I know will raise controversy.

Ritalin

And there I went again to search the internet to know more information, more news ... but the controversies remain the same, and we really do have to examine each case every child, every diagnosis, and visualize us that no decision is taken lightly.

The decision was not taken from one day to another. And who follows this blog knows that I took over a year to accept the verdict of doctors. And doctors say, because they will never allow myself to own and J. made a diagnosis that is precipitated. Diagnoses were made in various contexts: family, school and outside school. But there were several symptoms that persisted and increased.

J. is accompanied by a multidisciplinary team fantastic, as they have said in other post's, ranging from pediatricians, child psychiatrist, psychologist, neurologist, and technical development of special education. And it was on gathering all the information provided by me and this team could once again reach the conclusion that was reached (with much sadness in my heart, with much frustration within ...) - INCREASED DOSE OF Ritalin

Before I raise the issue if not I think of side effects in the short and long term, or if I am to despise? ... I think my sadness and frustration answers that question.

But through the most painful, we realize all that your diagnosis is not an exaggeration, is not to be excessive, given the positive effects it has on J.

I'm in good conscience, which were made all appropriate diagnoses, which was raised all the necessary information in various contexts, there is no margin for error in diagnosis. Because for me it was very important to make sure it was not necessary and we could overcome all these difficulties without Ritalin. It was not only based on information supplied to me, however ...
Is not
a first-line intervention. J. since diagnosis has behavioral therapies, which might have helped to 'manage' their hyperactive behavior, but unfortunately, although the hold, have not had the desired effect. And we're not talking about 6 months or 1 year. Already from the beginning to make the diagnosis!

Unfortunately, also the diagnosis J. Not only is attention deficit / overactivity. We are talking about a boy who has since the beginning and primary diagnosis of Autism Spectrum Disorders.

There is controversy because there is indiscriminate prescription or not, I can agree with some situations, but we must understand that it is applicable to all! In J. the positive effects have been visible at the academic level and emotional balance. But this time, perhaps due to its growth, now goes to 8 years (!!!) the dose is not having any effect whatsoever. As a symptomatic treatment, has no curative effect (unfortunately), the action on the brain lasts only while the pill takes effect, this is not happening. Even after pill, J. remains unstable, restless, impatient ... is not to resolve or alleviate the symptoms characteristic of this diagnosis. As such, we are not able to increase their quality of life.

Controversy, polemics, but the truth is that dealing with this 'problem' is a daily dilemma! At this time the side effects are a lesser evil compared to what we have without the medication. I'm talking about school life and relational J. which is being ravaged by the lack of effect of the drug at this time.

Previously, J. did not take the end-to-week, nor in time of vacation, but even being a bit of chaos all around us (J, I and family), we could overcome! Right now, at least temporarily, is no longer possible also to give 'the medicine at the weekend. With a lower dose than during the school week, but this time is critical to your own emotional balance and its back to take the medication. Of course I do not see this solution with good eyes, but I can not ignore the good that did when he had the right dose, given its weight and age at the time.

There are associations and movements that were born to fight or defend the use or not use this medication.
'Save your children, DO NOT GIVE THEM Ritalin'- respect this opinion, this attitude, but do not point your finger, please!

http://www.ritalindeath.com/
http://forum.casa-indigo.com/topic.asp?TOPIC_ID=455

J., as well as other children, school success can only (and not talking about big hits !!!!) - J. 8 years and have not read or write ... is not abstract notions of reality and various school subjects! - Without Ritalin J. simply can not be attentive, concentrate in the classroom .. and this time not in an activity on your taste - as simple as going to the movies! Worship and concentration we could, even without Ritalin, and now ... even something as simple as going to the movies is possible!

Before, I felt lost when researching on the subject.
Today I feel that my experience as a mother, it allows me to feel calm in the decision. Frustrated and sad because he could not help J. by myself! But I have to accept it, because everything is very complex but it is a reality!

Continue with the therapy, but unfortunately they, too, by itself, is no longer the solution!

I wish I could be here to report that J. is simply a passing phase for their age, or is simply an ill-bred child. Long wanted to believe it! ... but it is not our reality.

If I do not trust the multidisciplinary team around the J, in which I believe included a neurologist, with as much knowledge as Dr. José Carlos Ferreira ... I trust what or whom? - Well, I'll answer this rhetorical question: TRUST IN ME AS A MOTHER!

NOTE: risperidone also had to be increased ...

Friday, 21 January 2011

What good man to produce more and more, is not known to share what it produces?

If you offered me all the wisdom of the world with the condition to keep it to myself, without communicating to anyone, I did not want.

Mathematical form

DOWNLOAD
Slowly, engaging and fun, I decided to try to 'untangle' the math.

What we get now in the child
- A structure of thought
- Perform functions in everyday life
- Future Learning

Sunday, 16 January 2011

Difference


Deal with Autism every day is learning to live every day with a difference and try to reach the conscience of the world. ♥ ♥ ♥

Learning Math

Learning Math - see the movie

Human development is very rich and diversified. Each child has their own characteristics, which distinguish them from others and its own pace of development that we must respect - I learned to do it.
What makes life worth it is this constant uncertainty about the next moment, that's what encourages us to invent, create, perform, trying to improve our world.
If they see the first films in this blog post, be able to see this development, it's very own John .. is what gives me strength to continue the fight!

Monday, 10 January 2011

Dance with D'Zrt



Have you noticed that we do when we receive a gift that both wanted, or our club scores a goal, or we received news that makes us very happy? We jumped for joy, right? We do this because we are obeying an internal rhythm, our body moves to express that feeling.

Thus arose the dance: the need for man to lay out their emotions. Before trying to communicate with words, people have expressed themselves with bodily movements. So, dance is considered the oldest of the arts, and perhaps also the most complete, because who dance at the same time create a movement and expressed through the body.

An art that reveals all sorts of emotion without a single word ...
♥ ♥ ♥

Saturday, 18 December 2010

The Neverending Story II - Top


Be different - a minority that continues to confront the insensitivity of most "normal"

Write ultimately make life less burdensome. It's like going a little bit of weight they carry on their shoulders for all the people who read, or simply in the white pages, which are to be met. It seems that everything becomes lighter.

I want my testimony has never lost its roots, which are fundamental in my writing: to inform and enhance the positive side of life.

I liked that charming, that is emotional and that inspire with my words. I hope one more beautiful, more modern and more enlightening. I hope you are ready to have new experiences, sharing, feelings, emotions ...

It's my way of thanking the greatest gift I give: that side feel and be prepared to face the DIFFERENCE!

In the beginning was an idea. Once the idea gained name - SHARE MY SHOULDER FRIEND - then began to take shape. Always with a longing to make a difference. Create a blog, really made think about the real needs. Had the ambition to create a different blog, without taboos, who spoke on the theme that is part of the universe of many mothers, who want more for their children. The goal that I made seemed audacious - be different and make a difference. Dreamer! Maybe ... but what is life without dreams? What this meant time spent is difficult to translate the few lines that I intend to write here.

Many had stories to tell, but, essentially, to me showed me that this side had many real mothers and professionals wanting to share this dream and this idea. And that helped me shape it with your reading and the feedback they were giving me. And it's you that I want to thank this time. I promise that from now on I intend to get more special posts to you. Expect to spend the next few days trying to do my best to surprise you and, in my own way, make Portugal more caring and sensitive.

It is a sharing of emotions and feelings through a simple form. A blog of passion and friendship. I hope it's a blog of ideas. Ideas that make this space a welcoming place where people feel good. What is light, engaging and infectious.

THANKS TO ALL THOSE WHO HAVE FOLLOWED ME IN THIS ADVENTURE!

Monday, 25 August 2008

New online to download GAMES and PECS


Finally I manage to get the games available for download!
With the help of a friend Luis Relvas - Trainer through Educational Games will have to download them.

I am very happy because actually, the requests are many and I have had the capacity to respond. For the reasons easy to understand? Many times I made the attempt to make the sending of games, and some because of its size, is returned.

In any case, always have my contact spaco@sapo.pt - Questions, sharing, which need!
As far as possible, I do not mind to customize the games, according to the needs of each.

All this was born of a need own, and therefore have an enormous pleasure to share.

Initially, the games available are without sound.
Over time will be improved.
Where there is this update, I notice that in their blog.

In this space will be recorded my experience, I find relevant and important in the evolution of John

The PECS also be made available in another page, more organized and therefore easier to find.

A hug to all.

PECS

It is not my intention here to be with theories. There are many sites with all this information. More difficult is to material, mainly free.
Again, I say, my intention is to share everything we have and that is useful for others as it has been for me.

Who has a child with autism, knows that the PECS are of extreme importance. Both the level of communication and of organization.

The John uses the PECS both in therapy, at school and at home.
For John that already uses the language, the PECS essentially help in the organization.
They are attractive, fun and help reduce their anxiety. The key to your balance.

Who is also very like Jose! What now also starts to use the PECS to put some order into their routines.

The PECS, with imagination are very easy to make and use.
I always with colors, because they are more attractive.

PECS - see for download